Still no growth and no answers. They sent the biopsy to the University of Washington today but it can take up to 8 days to get results. It so frustrating not knowing whats going on. They are pretty positive its a rare bacterial infection but we dont have a name yet. Things just havent been improving either being on these new IV antibiotics. He still is having high fevers and still requiring oxygen. His white count jumped up to 20 today and his CRP (a test showing infection) jumped up as well. The doctors just keep saying that it just doesnt happen like this. Skyler is the perfect example of things not ever going as planned. There is no end in sight yet and I hate the fact that we may be here for Easter. He was so looking forward to Easter and having an Easter Egg hunt with his cousins.
We did start chemo again today. He got the dose of Vincristine and Doxorubicin that he missed last week. Our oncologist thought it would be ok since he has counts. We did the CT of his brain today and it came back clean. The doctors, as well as me, were concerned with this sudden change of moods especially since he isnt on steroids. Steroids can cause this type of behavior but Skyler is unable to take them because of his fungal infection. Thank goodness the brain isnt the cause. The child physcologist came and talked with me and Skyler today and his take on it is that he is just sick of being sick. He is now realizing that all these hard, scary, not fun things he has to do everyday arent going away and he is reverting back a little in how he is handling things. He was actually impressed at how mature he is though, and its true, Skyler has had to grow up too fast.
You cant tell in this picture very well, but Sky started getting a weird rash on his back. We dont know why but hopefully it goes away soon.