Nothing has grown yet from the biopsy. The Infectious Disease doctor says that the nodules are little abscesses filled with puss. If nothing has grown tomorrow they will send the sample to the University of Washington where they are experts in testing the DNA of the bacteria. Hopefully they will be able to identify exactly what this is.
I havent mentioned this before but for the past couple of weeks Skylers moods have changed dramatically. He isnt the happy, calm, sweet boy that I know right now. He has been VERY angry and yells and hits all the time now. I havent seen him laugh much either which he normally does all the time. I thought at first that he just wasnt feeling well, but it has continued on for at least a couple of weeks now 24-7. He will switch back to his sweet self and tell me he is sorry for being mean and that he still loves me but then he will switch back to being angry really fast. I am actually very concerned that something is going on. This change happened very suddenly and its SO different from how he normally is. He will be going down for a CT scan of his brain tomorrow to see if that can tell us more. The child phsycologist is going to evaluate him tomorrow also to see if he thinks this is medical or behavioral. Please pray that nothing is wrong with his brain.
Also he has a pneumothorax (air in his lungs) so he is requiring more oxygen at night now. Instead of the blow by we put him on a nasal cannula last night. Im praying this oxygen issue will correct itself soon. I hate the fact that he needs oxygen, I have gotten used to seeing him with no tubes on his face. He was so sad that he had to have another tube in his nose, but once we got it on and he could actually breathe it didnt bother him at all. He was so good at putting it right back where it should be when it fell out. It looks like we will be staying here longer than I had hoped.
For some good news, Skyler was able to go and walk out in the halls last night. He was in pain but still wanted to try. He did great and didnt even want to hold my hand. The nurses were blown away because most of them have never seen him walk. This was his first time walking in the halls all by himself. That first week he was diagnosed I think he walked out in the halls once but had to have help because he was so sick. It made my day seeing him do this. Good job Skyler!