Monday, April 11, 2011

Skyler continued having fevers through the night and into the morning.  He also woke up today with his right eye almost completely swollen shut.  His urine and vomit have turned from a dark orange to a bright yellow color.  I took him into clinic today and they did more cultures, a nose swab checking for viruses, and also gave him more Rocephin.  Besides the nose swab, they drew some additional blood to check for mono and CMV (which he has had active before)  So far the cultures from the last 3 days have come back negative.  Thats a good thing, but he is still having these high fevers and I want an answer as to why.  If he is still feverish tomorrow our next step is to scan his sinuses and body for anything that could be hiding in his organs.  They are also going to hold off on his chemo he is supposed to get tomorrow.  The doctor we saw today wants to keep a very close eye on him because Skyler is "special" and never does anything along the lines of normal.  He told me that in all the years he has worked he has never taken care of a child like Skyler.  That doesnt make me feel too great hearing that.  
His white count and ANC did come down a little though, so thats good.  His platelets went down too, which is not good.  Also his bili went from .3 to 1.0 so thats concerning.  Its still in the normal range but I just hope it doesnt go any higher.  All around Skyler has been feeling pretty crappy.  You can just tell by looking at him he doesnt feel good.  I just hope we can get answers with these tests we did today so we dont have to resort to scans.  These past few days have just seemed all too familiar to me and I dont like it.

The swelling in his eye had gone down by the time we got to clinic but you can just tell that he doesnt feel good.  (sorry this was taken with my phone so its not the best quality)


Skyler is so sick of people touching his line so he was really grumpy with this part.  This guy is my favorite nurse up at clinic though and handled it really well. 

5 comments:

Anonymous said...

Extra thoughts and prayers tonight. Skyler has already been through so much, I hope he feels better soon. Thank you again for the updates.

Annie said...

Poor sweet boy. I will keep him in my prayers tonight. It breaks my heart to see him look so sad. What a strong, amazing little boy!

Brandi Robinson said...

I read your blog faithfully...Skyler reminds me so much of my little guy. My heart breaks for all that he has to endure and for you too. Even though I don't know you, Skyler is always in my prayers. It breaks my heart as well to see him looking so sad and not feeling well. I will say a special prayer for him and for you. He is an amazing little boy.

nsudburyfam said...

We are thinking of you guys. I hope he is feeling better and that you can get some answers.

Chelsie said...

I'm so sorry you're not getting any answers! I hope things clear up quickly. We think about you guys all the time at our house.