Thursday, April 21, 2011

Still here.  Still no answers.  Still needing oxygen.  Still having high fevers.  Skyler's hematocrit was also low making him really tired and pale so they gave him a blood transfusion today.  He also cant leave his room because they have him on contact precautions where they have to gown up when they come in the room pending some tests.  It also looks like the site where they did the biopsy may be infected.  The surgeons will come look at him early in the morning.  If that is the case it will need to be drained.  Skyler has hit his breaking point and is just sick of everything.  He cries everyday almost all day that nobody loves him and that everyone just wants to hurt him.  This little boy has been through enough, why do more things keep piling up on his plate?  Why cant he have a normal care free life?  He is just a little innocent child, he deserves to be happy running around laughing with other kids.  If you cant tell Im at my breaking point.  I NEED my little boy to get better.  I cant even describe the pain I feel having to watch him day in and day out suffer and not be able to make it better.



19 comments:

patti said...

my dear sweet gurl how sad i feel for you and your wonderful boy..the only thing for us to do id offer up many prayers for skylar to start feeling better and soon to be home again.....ptti in canada

Nick & Bon said...

Crystal, you and Skyler both deserve a break and I pray that you get one. I hope that you get answers on the tests quickly, Skyler's high fevers subside and that you're able to go home soon. Please know that there are so many that do love Skyler (even those of us that haven't met him) and that we're continually thinking of you both. Can Skyler receive care packages (if they are just dropped at the front desk)? I'd love to bring something by the hospital.

Hilary said...
This comment has been removed by the author.
Anonymous said...

I'm so sorry you guys have to go through this. Please let Skyler know that he is one of my heroes and there are people around the world who love and pray for him. I am going to the temple tomorrow and I will put his and your names in. I hope you find answers very soon!

nsudburyfam said...

Crystal-
I am so, so sorry and I wish that I could take this all away. There are no words that would even do justice to how we are feeling for you. You constantly amaze me and I am honored to be your friend. I hope things turn a corner soon so that Skyler can start feeling better. We love you guys.

Christy said...

I admire the strength you both show throughout this entirely long trial (upon trial). You both are strong people and I couldn't help but follow along your blog. I'm so sorry you have to endure these pains; you are in my prayers!! And Happy Easter to you both!

Brandi said...

Crystal and Skyler, there aren't words that I can type that will make you feel better. Just know that there are many people out there thinking of you constantly and saying so many prayers on your behalf. This little guys deserves a break and so do you. I hope and pray that you get that soon. I too would like to bring him a package to help boost his spirits. Please let me know if we can just drop that off, or how to get it to you.

Rah said...

Crystal my heart aches for the both of you. Please know you are constantly in our thoughts and prayers. If there is ANYTHING my family and I can do or get for you and skyler we would jump at the opportunity. You are both my hero. Stay strong. Answers will come soon. All of my love.

Jenny said...

Hang on. I'm sure that you are finding strength within yourself that you didn't even know that you had. You can do this.

Todd Sorensen said...

I like so many feel inadequate to express words that would help bring hope, comfort, and lift your spirits. How can we help lift his spirits and yours? Prayers, and love felt hopes to you both. Let others lift you. Let others help. Answers will come..

Amy Stewart said...

Im so sorry crystal. If you need anything please call me. you guys are in our prayers. Love you both

Eisha said...

Just mailed a package today!! I hope he loves it (all aussie). The post people were having a hard time with the address so I sent it to Amanda Flamms address and it should get to her house on Saturday--hope she can bring it by in time to cheer him up!

Susi said...

Don't have words. Just sad for you and please know that I'm praying for you although that just isn't enough right now. :( He is so so brave! I HOPE the answers to getting him feeling better are coming SOON.

Erin Smith said...

Crystal you and Skyler are in our prayers! Kace calls Skyler his best cancer buddy. We pray for you every night. Hang in there... Have faith... You are such a strong & courageous woman. Skyler is so lucky to have you!

Anonymous said...

You and Skyler are always in my thoughts and prayers. Others have posted about gifts for Skyler. If there is anything that would put a smile back on his face for even a moment, please let us know.

Laurie said...

Skyler does love getting care packages, and he gets a big smile on his face everytime. They can be dropped off at the front desk and he will get them.
Thank you for all your love and prayers!
Skylers Grandma

Brady said...

I love you and I love Skyler. I am so sorry for you both. His pictures break my heart. Please know I am thinking about you.
Millie was on the news tonight and they didn't show it, but all she talked about was how she loved HopeKids because she met Skyler and Cami there. She still hasn't met Skyler, but she feels like she knows him personally. She really loves him.

Brady said...

this is amanda

Kristin said...

I wish I had words for you. This is all too much. Praying you get answers and he starts to get better soon.